Friday, May 7, 2010

14 pounds, 11 months old

We're preparing for Christopher's birthday and having appointments as usual. Dr. K is very concerned at why Christopher is not gaining when I am packing calories into his bottles. By my calculations, he is getting close to, if not more than, 200 calories in each 5 oz bottle. This baby should be a Sumo wrestler. He should have fat rolls all over his body. However, in 3 weeks time, he hasn't gained one ounce! He still measures at about 26 inches. WAY off the chart for a near one year old.

 Dr. K orders a repeat ultrasound and something new - a EGD. He wants to do a scope. With biopsy.

The appointment is made for each. We are relieved when the ultrasound shows nothing. Nothing is good, but we need answers.

On scope day I am worried that we will find nothing here, as well. Nervously I pass off my itty bitty baby and wait the 15 minutes for the doctor to come in and share his findings.

Dr K is back in the room in no time with pictures to share. The esophagus showed classic signs of reflux - which we knew about. His stomach looked normal - good news there. However, his intestines showed classic signs of celiac disease. The tiny villi that are supposed to line the intestine and carry nutrients to his body are not there. The intestine is flat and white. We must wait 2 weeks for the biopsy results, but Dr K urges us to go ahead and start a gluten free diet. I am SO relieved to know - some clue into his vomiting, stinky and loose diapers and very slow weight gain and growth. And this begins our story with our CELIAC BABY.

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